New Themeby Angie

Sat
12 Jan 2008
6:01 pm
3

So, what do you think?  Jim said it might be time to switch things up a bit and try a new theme for our blog, so here’s my offering.  It’s a little trippy to suddenly have all the links on the left instead of the right, but I think I can get over that.  I like the simplicity – and the tribute to San Francisco seemed appropriate.  🙂

Anyway, hope you like it!  Feel free to leave feedback in the comments!

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Meeting my NEW new Cardiologist…finallyby Angie

Fri
11 Jan 2008
2:01 pm
1

So, rather than going to Dr. Anne Dubin (as Dr. Etheridge receommended), I have been referred to Dr. Daniel Murphy of the Stanford Adult Congenital Cardiology Clinic. Initially, being referred to a new doctor all over again was discouraging. We were worried (as faithful readers of past blog posts will recall) that our insurance was going to put up a fuss since, of course, Stanford is out of network for our medical group. I was not looking forward to more weeks of phone calls, forms, and letters in order to get another new doctor approved. I decided, before starting back at the beginning, to try sending an email to the Nurse Practitioner/Office Manager for the Clinic explaining my situation. Well, I went out on a limb and tried something new and different and – wonder of wonders, miracle of miracles – we found a friend with the best news we could get: Andrea wrote me back within two days and said,

“The American College of Cardiology has specific recommendations regarding the care of Adults with Congenital Heart Disease. They were established at the Bethesda Conference in 2000. Here is a link you might find useful http://www.achaheart.org/bethesda.php …This means that your insurance needs to follow these guidelines or they are not adhering to current standards of care.”

Basically, the Conference established that anyone with congenital heart defects must be given the opportunity to be treated at an Adult Congenital Clinic. Any insurance that denies coverage for that opportunity is denying a basic necessity and right to that patient. Furthermore, she told me not to worry about the insurance on their end – she would take care of the approval process! She has been amazing, really.

So, already quite pleased with Stanford, I finally got to meet Dr. Murphy. Though very friendly and considerate, he is – in practice – very different from Dr. Etheridge. He did not seem as interested in individual symptoms, but more concerned with the overall picture of my general health: exercise, diet, hygiene, moods, habits, & hobbies. Maybe that’s just because this was his initial consultation with me. He feels that I am stronger since the surgery and that he wants me stronger still. Rather than, “Do as much as you feel up to,” his injunction was, “Do as much as you possibly can.” He is also different from Dr. Etheridge in his opinion on Coumadin: he puts just about every fontan patient on it, even when they don’t have extra risk factors (which I do). He hasn’t prescribed it yet, but he basically warned me that I should expect it eventually. I am not excited about it. Very not.

Overall, though, he seems really great and I’m glad to be working with such a supportive clinic. Our visit prompted a family council about goals and now I am back to doing light Pilates exercises every day. The first and foremost thing I’ve learned from Dr. Murphy so far is that my health is up to me. …I haven’t felt like that about it for a long time, but it’s a good feeling.

Airport Fiasco Part 2: The Return Tripby Jim

Mon
7 Jan 2008
8:01 am
4

SFO

You’d think after our last experience, we would do everything in our power to avoid another fiasco like our last one trying to get to Utah. Well, the fates were against us this time. Get ready for another long post.

Angie bought our tickets a few months ago. Angie bought them because she has a SkyMiles account and we wanted credit for the trip. We figured a nice mid-morning flight would be best, so we booked an 11:20 flight home for me. Angie wasn’t returning until Sunday, so our return flights were different. In the weeks since we bought the tickets, Angie got a few emails regarding itinerary changes. A week before we left I asked her to forward me a copy of my itinerary so I would know when my flight was. The return trip now left at 2 in the afternoon on New Year’s Day. I was determined to get there in time to make sure I didn’t miss my flight again.

The day came and I was packed and ready plenty early. We ended up giving a ride to Ashley Ogzewalla since she had a 1:00 flight. I figured it was perfect; we would be forced to get to the airport plenty early. However, our plan was flawed. We got to the airport at 12:30, more than 90 minutes before my flight was supposed to leave. I went to the kiosk to check in and was surprised when it told me I could no longer check into my flight. Upon closer inspection, I saw that my flight had left on time at 11:20. It turns out Angie had send me her itinerary and her flight was at 2 on Sunday. I had missed my flight by over an hour; I wasn’t even close this time!

I got in line to see a ticket agent hoping there was something that could be done. It took me about 20-25 minutes to get to the front of the line. I told the agent there had been a mix-up and I had missed my flight and that I would like to get onto the first flight to any airport in the bay area (San Francisco, Oakland, or San Jose). He was really nice about it and said there was a seat on the 9:30 pm flight to Oakland. I had someone picking me up, so it really didn’t matter which airport I flew in to. I said 9:30 would be fine and then he punched a few more keys and said, “You must be living right — two seats just opened up on the 2:50 to Oakland.” “I’ll take one,” I said. I was ecstatic; I even got to choose between window and aisle. (I chose the window-seat.) Since I was so early for my new flight, I got extra screening at security… yippee.

I phoned my wife and told her the news, then I called Justin, my ride, and told him when to pick me up. Everything went very smoothly from that point on — for me at least. Angie was scheduled to come home on the 2:00 flight on Sunday. We were pretty sure about the departure time thanks to my mishap. The night before her flight, I urged her to make sure she was on-time. Our airport track-record wasn’t turning out very well and I wanted to make sure we got this one right.

She arrived at the airport and checked in with no problems (so far so good), but when she had to show photo ID, the agent said, “Um, your license is expired.” Angie panicked and started to explain and the agent was really nice and wrote her a little note to say her ID would be valid (since this was a return trip and there wasn’t much that could be done). It would have been nice if that was the end of the story. The security officer wasn’t as understanding. “This note is for Delta, not airport security,” they told her. She tried to explain, but they insisted, “You’ll have to do a pat-down and we’ll have to do extra screening on your baggage.” This was perfectly fine with Angie because she has to do a pat-down anyway because of her pacemaker. She had made sure to arrive early enough that the extra searching wasn’t a problem. She said they even asked her questions about the contents of her luggage. Ironically, her license expired before we left on the 20th. I guess we lucked out that it wasn’t an issue on our way to Utah.

I picked her up yesterday at San Francisco Int’l and (fortunately) everything went very smoothly on this end. Her flight was a few minutes late, but besides that everything went like clockwork. In the end, I’m glad we took this trip, but I clearly see why people opt to take the 12-hour drive to Utah instead of braving the airports.

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An Anniversary Giftby Angie

Mon
31 Dec 2007
1:12 pm
0

I’m very sorry we haven’t posted much since coming to visit Utah. I hope to do some catching-up later this week. In the mean-time… Yesterday was our Wedding Anniversary, and I’d like to share a sweet gift we received from Jim’s sister, Rachel, in honor of it:

Cookie Jar

She sent this illustration to us, with this title: “Love is a Full Cookie Jar.” Thank you so much, Rachel, for your thoughtful gift!

To see more of Rachel’s art, feel free to visit her homepage: Lady Rachel’s Garden.

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Airport Fiascoby Jim

Sun
23 Dec 2007
3:12 pm
2

Sorry for the long post, but this was an eventful and frustrating day… so, hear me out.

The bay area has a few airports, which can be kind of confusing. Until the night before we left for Utah, I thought we were flying out of Oakland — the same airport we’ve used for the last few trips we’ve taken. I had forgotten that the best fares were out of San Francisco Int’l Airport. Justin Bradley was kind enough to drive us to the airport early Thursday morning. I had originally told him what time I wanted to leave based on the distance to Oakland, not San Francisco, but I called him the night before we left to reschedule. I thought that an hour would have been enough time and that we wouldn’t hit traffic that early in the morning.

Well, I was wrong on both accounts. We were a little bit late getting out the door (10 minutes or so) and then we hit traffic. I had planned on being an hour early, but we ended up walking into the airport exactly 30 minutes before the flight was scheduled to leave. They put us in line to wait to check our bags, so by the time we got to the kiosk, we were only 25 minutes early. Unfortunately, the kiosks don’t let you check in if you are less than 30 minutes early, so the agent told us we missed our flight and that we should go call an agent to reschedule our flight.

I sat on hold for a few minutes waiting for someone to answer. The lady said that everything was pretty much full and that things didn’t look good. The best she could do was put me and Angie on a flight that went to Los Angeles, then to Phoenix, and then to Salt Lake City. By the time she took my credit card and booked the ticket, there were no seats left for Angie. I asked if they could switch and put her instead of me (since Angie had a surprise birthday party to attend), but she said we’d probably lose our chance if she tried. She told me to hurry and go to the ticket counter to get our ticket and rush to the gate.

We walked over to the counter and got the attention of an agent and explained what happened. It took a minute to explain what was going on, but they quickly got us ready to go. They checked two of our bags, but the third they forgot. When I mentioned it, they tried to check it too, but it was too late and they had to do a handwritten tag, which worried me a little. They rushed us through security and we hurried to our gate. There wasn’t too much need because the flight was delayed. The agent told me to cut in line and I ended up right in the middle of a family going through security. The mother of the family looked irked and said to me, “I don’t understand how you got in the middle of my family.” I felt really bad as I said, “I’m sorry, they just put me on a flight that is leaving right away.” I didn’t know what else to say, so I just tried to pretend I wasn’t there, which doesn’t work like it used to.

It must have been that the flight was delayed that we were able to get on. They couldn’t put us on a flight that left at 7:30 when we were only 25 minutes early. But at 7:25 they put us on a flight that left at 7:53. I guess that 5 minutes makes quite a difference.

The flight to L.A. left late by about 30 minutes. We landed at about 9:45 and taxied toward the airport. We were parked on the tarmac when the captain told us that our gate was occupied by another plane and that as soon as they push back, we could pull in. He estimated it would be about 10-15 minutes. 20 minutes later, he came back on the P.A. and explained that the plane at our gate was waiting to leave, but that their crew was on a flight that was just arriving so it would only be another 15 minutes or so. Everyone was getting pretty restless. Lots of people were asking the flight attendant what would happen if they don’t get to the gate in time for their connecting flight. Finally, the plane started moving, but we just drove in a circle and stopped again on the tarmac in a strangely familiar place. The captain came on the P.A. a time or two more and told us they were still trying to find us a gate. Supposedly, the gate that was intended for us was vacated, but that they gave it to someone else, so we had to go to another gate. We taxied over to another part of the airport and waited even longer. We spent about an hour and a half on the tarmac and finally got off the plane at 11:20.

I had called my dad a number of times to try and find another way to Salt Lake. He found that there were 3 flights from L.A. to S.L.C. that left before our flight to Phoenix. I wasn’t really excited to go to Phoenix, so I planned on trying to get onto a non-stop as soon as we got into the airport. Well, because we sat on the tarmac so long, we missed the first one, but the next had been delayed, so we had about 40 minutes before it left. I went up to the counter and asked the agent if I could get on the flight. She brushed me off by saying, “No, there are already 11 people on the list and only one person hasn’t checked in.” I asked about the flight that left after 1:00 and she said it was overbooked by 15. I was discouraged after being couped up in the plane for so long, so I didn’t push it. It turns out that there would have been room for Angie and me if I had insisted on getting on the flight. (Dad looked to see who did get on and we should have had more priority if we had been on the standby list.)

We were hungry by now, so we went to get some lunch. Our flight to Phoenix left at 1:35, so we had plenty of time. The next flight to Salt Lake left at 1:04, and I didn’t want to risk missing both, so I decided it would be best to just go to Phoenix because we already had seat assignments and there was no risk of not getting on the flight.

When we got back to the gate, we saw that the flight had been delayed by about 45 minutes, so I called Dad and asked if he thought we should try the S.L.C. 1:04 flight after all. He said it had empty seats and I just barely had enough time to get to the gate. I ran ahead of Angie to get to the gate first (it was in a different terminal) and got in line. When it was my turn, the agent said to me, “Are you on this flight?” “No, but I want to be,” I said. I explained my situation and she quickly took my other tickets and did a bunch of typing on her computer and handed me some new tickets. Angie arrived in plenty of time and when the agent handed us the tickets, we thanked her and hurried to the jetway. The agent took our tickets and closed the doors behind us.

My dad was there to pick us up in Salt Lake, but (understandably) our bags didn’t arrive with us. We went to the lost luggage office and asked about our bags. It was a little strange to explain our situation; we had managed to arrive hours before our bags were even scheduled to arrive. The man at the counter couldn’t give us a reference number because our bags weren’t technically late yet. He tried to look up the bag tag numbers we got when we checked them, but they weren’t showing up in the system. He told us to call later to see if the bags arrived. I had planned on just showing up at the airport when the Phoenix flight was scheduled to come in and take the bags off the carousel, but the weather got pretty bad, so I decided to pick them up in the morning.

I called later in the evening to get an update on my bags, and to my dismay, they could only find one of them in their system. Strangely, it was the handwritten tag that came up. Unfortunately, it was scheduled to go back to San Francisco. The agent sent an urgent note to the Phoenix baggage people to forward the bag to S.L.C. instead. The other two bags that were scanned the regular way didn’t have any information about their whereabouts. We went to bed in borrowed pajamas and hoped for the best.

The next morning, I drove down to the airport with Dad and went to the luggage office. Fortunately, the two bags they couldn’t find in the system were sitting in the storage room. The third one (with the handwritten tag) was nowhere to be found and there was no update on the computer as to its location. The lady helping us created a reference number (now that our bags were officially delayed) and said she’d do what she could to get our bag back. She was actually quite upset that the bag was due to go back to San Francisco because it didn’t make any sense why they would have done that. My brother was flying in at 4 pm, and there was a flight from S.F. that should have arrived just about the same time. It would have been perfect.

Now that I had a ref. number, I could check the status of our “delayed” back online. I checked throughout the day and was a little discouraged to find out that it didn’t get on the flight we wanted it to and that it was scheduled to arrive in Salt Lake at 8 pm. I arranged for delivery and we finally got it Saturday morning at 6:30. The driver knocked on our door and said, “I can’t find your bag, but I’m sure it is in the van.” Mom woke me up and I went out into the freezing cold in just my pajamas and moccasins to dig through all the lost luggage in this guy’s van. Our bag was hiding under two ski bags. We pulled it out and we thanked the driver and I went back to my room and back to sleep.

So, the moral of the story? Use carry-ons when you can. Don’t travel on one of the busiest traveling days of the year. Always put your prescription medication in your carry-on. Also, bring your pajamas and one change of clothes in a carry-on. Remember which airport you’re going to. Leave earlier. Be assertive.

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Here Comes Santa Claus!by Angie

Wed
19 Dec 2007
10:12 pm
0

Jim and I made jam this week so we could take jars of it to our friends for Christmas. Today, I got them all decorated and super cute so that tonight we could deliver them. When we pulled up at the Coolbears’ house, we saw Brother & Sister Coolbear and their daughter Kayla, along with another girl her age, walking down the sidewalk! We pulled up and told them we had come to bring them a Christmas treat, and they invited us to join them in caroling to another family in the ward who lives across the street. We parked the car, climbed out, gave them their jam, and followed them to the Allens’ house. They told us to sing “Jingle Bells” and then just the first line of “Here comes Santa Claus.” Well, we rang the doorbell, and when Sister Allen answered, we all sang a slightly out of tune but enthusiastic rendition of “Jingle Bells.” Then, as instructed, we sang the first line of “Here Comes Santa Claus”…and Santa himself came running up the walk from behind us!

We were all invited inside, where Santa made himself at home in a big chair, and asked, “Is there a ‘Carter’ in this house?” and then asked for each family member by name, at which point they would go sit on his knee and tell him what they wanted for Christmas. Santa would check his list and give them a little gift. After both Sister and Brother Allen had taken a turn, Santa then said, “Is there an ‘Angela’ in this house?” I looked around, thinking there was a daughter I had missed…but after a beat, I realized that everyone was looking at me!

So, yes, I got to sit on Santa’s lap and tell him what I wanted for Christmas, and so did Jim. We said we wanted to fly to Utah and visit our families and see my cousin get married, and he said he could arrange that.  That Santa is pretty amazing – now we’re at home, packing for the trip to Utah we asked for!  🙂

Try-Me-Night Review: Crock-pot Chicken Enchiladasby Angie

Tue
18 Dec 2007
9:12 pm
2

Becka’s mild chicken enchilada recipe is one I’ve made many times before, but altering it for the crock-pot made it a try-me night. I wanted to try making the enchilada filling in the crock-pot (for those who have Rachel’s crock-pot chicken alfredo recipe, the method is very similar), then rolling the tortillas and cooking them in the oven to finish them off. It actually worked really well, and I felt like it took much less effort on my part. I thought that using all dark meat might make it too greasy (since all the fat would be stuck in the crock-pot as it cooked), so I used a combination of chicken thighs and breasts. The meat was cooked beautifully after four hours on high in the crock-pot! I also warmed up the tortillas before rolling, which made them easier to handle.

Overall, it was a great experiment, and I think I’ll keep doing it this way in the future. Thanks for the original recipe, Becka!